We are looking for adults 18 years or older who live with chronic pain and use a data-driven neuromodulation device.

Chronic pain signifies an inherently subjective sensation, which is mediated by neurological, psychological, and social processes. Hence, patient experience is crucial for understanding how neuromodulation can improve the quality of life of chronic pain patients. While clinical research has established a growing evidence base for neuromodulation as a therapy, little is known about the social impact of this therapy on patients everyday lives. This study seeks to identify the social factors that enable patients to live well with chronic pain using data-driven neuromodulation devices. REGAIN focuses on patients’ journeys with these devices studying their interactions on a daily basis for up to one month.

We believe that this will help foster patient-led innovation as well as inform the governance and design of responsible neuromodulation devices that support patients in living well with chronic pain.

The whole study will be conducted online.

What we would like you to do

Participants of REGAIN will be asked to

• report their user experience in a diary study for up to 1 month, for around 10 min. per day, using a messenging application
• participate in 2 online narrative interviews, each around 1h

Privacy & data protection

This study complies with strict privacy and data security rules overseen by the Cornell Institutional Review Board (IRB0143918 & IRB0010761). For example, any data collected during the study will be de-identified. If you have any questions about how we handle your data, please do not hesitate to contact me via benjamin.lipp@cornell.edu.